Support the fight
against Sanfilippo
Together, we can raise awareness, fund critical research, and give children and families affected by Sanfilippo Syndrome hope for a brighter future.
Our “Why”:
On April 17, 2026, after months of genetic testing, we learned that our son, Shep, had tested positive for a rare genetic disorder called Sanfilippo Syndrome (MPS-IIIA). We want to make sure families going through the same situation feel supported and have resources to help ease the burden. Any donations made to Team Sheppy will be distributed between funding research and exploring options to incorporate inclusivity in our local community for kids like Sheppy!
